It is now the evening before Maya gets her sedated Cardiac MRI, and Victoria and I get the Childrens Hospital of Boston evaluation and plan for treatment. We have already been told it is likely she will need open heart surgery due to the evidence that her right ventricle is enlarged. Their opinion is that any enlargement is evidence of a problem (excessive pressure) that must be corrected, as in opposition to the opinion of the cardiac staff in the Childrens Hospital of Philadelphia (albeit without Qp/Qs data that Boston noticed was missing from her report and had to request from her aborted catheter procedure at the Connecticut Children's Medical Center), who felt that her ventricular enlargement was "minimal" and "within normal range."
Victoria drove up earlier today to meet with the anesthesia staff, and I waited until after work to drive up. Victoria says that Maya was so excited and animated and gleefully squealing with the sights and sounds of the city. They were able to get some chinese food for dinner, and the restaurant was selling a large container of fresh watermelon chunks for $1.50, so Victoria bought them and Maya loved eating them. They then went for a swim in the pool and had a bath before Maya fell asleep.
Tomorrow AM will be very difficult for Maya (and for we who will be trying to distract her), as the requirement for sedation is no food past midnight tonight and only clear liquids until 9:30 AM tomorrow. The procedure will not begin until 11:30 AM minimum, and Maya loves her regular meals!
Brianna is staying with Grandma until Tuesday, and is looking forward to Maya having successful surgery and recuperation so they can each get a new kitten or perhaps a puppy if mommy's allergies permit.
More when we find out a plan and get a chance to digest the info...
Until then, here is recent video of Maya playing happily:
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1 comment:
My thoughts are with you....
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