Sunday, August 03, 2008

Sunday after surgery


Maya is doing very well today.  She has continued visiting the play room and has shown very little in the way of pain.  She has not been eating much, but better than yesterday.  She was able to get blueberry pancakes this morning and seemed to enjoy them, she ate about 1/2 of a pancake.  We have met wonderful people from all over the world to talk to.  We did not realize that Boston Children's Hospital is the World premier hospital for children's cardiac procedures.

Bit of a hassle today though.  The doctor in charge of coordinating procedures for the cardiac team was trying to persuade us to wait a month before getting a CT scan on Maya's lungs.  I argued very strongly for her to have the scan done tomorrow, as the Pulmonology  doctor already agreed to.  It seems that coordination across disciplines is fair at best everywhere we have been.  The coordinator will talk to all involved and give us their decision later or tomorrow.  They'll be a fight on their hands if they don't agree to the CT scan before we leave!

Very soon big sister Brianna will arrive with both Grandma Mimi (Victoria's mom) and Grandma Dayle (my mom).  The timing kind of stinks as Maya is getting tired for a nap and both lunch and visitors will be arriving soon.  Oh well. More later...

-Chris

No comments: