Tuesday, November 25, 2008

The Cute Little Tyrant

Maya with Mr. Heat Miser hair close up

Maya has been growing into a toddler more every day. She now has about a 30-50 word vocabulary and loves to say "Hi" and "Bye-Bye" to people. She can go from being extremely affectionate and caring to a little comedian to a sneaky little bully in a short period. She has been affectionately written up at day care as perhaps training to be a boxer. The worst target of her random hits is her sister. I think Maya gets a kick out of Brianna complaining to us that "Maya hit me again" or "Maya hit me in the face." Maya then is subject to a time out in a corner, which she goes and takes willingly. We started out counting to twenty, but now we count to fifty and she canot have her binky during the time out. She then is required to "say sorry" to the person hit and give a hug to that person. She also does this willingly and affectionately. It is very cute how she "says sorry." It is not verbal, but she made up her own sign, which is a sort of shrug to her right shoulder, with equal up movement on the shoulder and down movement from the head. I have it on video and will get it up here eventually.

Medically she has been stable, with the exception of her stomach peg tube. The site needs 2x daily treatment with a corticosteroid cream to prevent the development of a granulomatous wound. Even with the cream the site still looks red and pusses a bit. She can speak and drink well now, but she still has the tube in because we have been told that it would be dangerous to remove it before mid-January, as there is risk of stomach injury if the stomach has not fully adhered to the abdominal wall yet. So we still watch the tube closely and it still is an interference with her freedom of movement and ability to lie on her stomach and develop that skill (prone activity).

So that's that with Maya. Brianna is doing very well in Kindergarten. We got her first report card and had our first parent/teacher conference and she is performing at or above expectation in all areas. She is noted as being kind to other students. We like.

Victoria is as I type undergoing laparoscopic exploratory surgery to look for endometriosis or other possible explainations for recurrent pains in her abdomen that doctors have not been able to determine the source of by MRI (or CT Scan, I'm not sure which she had), ultrasound or x-ray. It would be nice to find out and if possible resolve her discomfort today. Hopefully we'll have some indication of a cause...

OK, the doctor just called me. They did find some minor areas of endometriosis which he removed. They also discover dialated veins (like vericose) around her uterus, which are apparently somewhat common and can cause generalized abdominal or pelvic pain after prolonged standing or at the end of the day, but are no big deal. Lying down relieves the dialation so in the AM people with that condition usually are discomfort free. He has some ideas for treatment for those which we get to discuss when Victoria wakes up and is able to converse - about an hour or so from now. So all in all perhaps some pain relief will occur for her now - yah!

Happy Thanksgiving everyone!
-Chris

No comments: