Surreal times

In the past days Victoria and I have been doing so many tasks at the same time that the normal perception of time has become blurred. It is surreal how much has changed in the past week, and the changes are coming at an exponentially faster pace. Tonight after work we drive to Philadelphia for a full day of exams and consultations Wednesday. We should have a better idea of what happens next at that point. Philadelphia Children's Hospital and their care coordinator have been wonderful to us, and we are greatful. If the administration from the San Francisco Children's Hospital are reading this, take note - you are losing business by having a patient coordinator that is poor in communicating and disorganized in having information available. Patients need confident and caring communication in deciding on a hospital to visit - San Francisco is renowned for their skills, but the patient relations suck.

Our family has been incredibly supportive, and we are fortunate and grateful. My sister Nicole and Her husband Eiko are taking care of Brianna, as well as my mother Dayle and my step-father Jack. Victoria's family has also offered incredible support. Our heartfelt gratitude goes out to all who are pulling for us in this troubling time.

If we don't respond to e-mails or calls in a timely fashion, please forgive us as so many tasks are going on that we need to prioritize communication time. Verizon's network is working overtime for our cell phones! Victoria is now texting while on conference calls on hers. Technology has been very good to us in this situation. I can't imagine where we'd be without the internet for research and cell phones for communication while away from home and TomTom to guide us quickly to unfamiliar places. We also have our ultrasounds on CD for easy transport wherever Victoria goes. Some people may be intimidated by it, but modern technology may literally be lifesaving to us.

On another subject to those reading this - anyone want a kitten or a teenage cat? We know of some abanoned kittens and very affectionate cats that need homes. Kittens will need mom for 3 or 4 more weeks, but cats are healthy - 1 short-hair domestic female and same for male. Actually I haven't seen the male in a while but the female is there all of the time - and it is not the mom. I guess the mom will need a home too if we can ever find it - it takes off whenever we come around, unlike the others. E-mail us @ seekerhiker@hotmail.com