Victoria spoke with the care coordinator at Philadelphia and all of her questions were answered professionally and quickly, putting her at ease. They also are going to get us in Wednesday AM for a full suite of tests and consultations. San Francisco's coordinator could not provide basic statistics and was very put off by Victoria's questions. Not good to have a poor attitude with a woman under such stress. Needless to say she called me in tears and we decided to go with Philadelphia. Later in the day Dr. Borgida spoke with Victoria and let her know he was going to refer her to Philadelphia. That made us feel good about our decision.
Dr. Borgida has put all of our info on a CD and our friend Pam dropped by the hospital and picked it up for us (thanks Pammy!). He told us the CVR ratio is just .5 (volume of CCAM compared against head volume). 1.6 and above is very worrisome - we will see the trend on Wednesday. I was surprised it was not much larger after seeing the ultrasounds. Guess that's why I'm not a doctor.
So away we go on Tuesday night and we'll see from there.
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