It is 11:15am Friday morning-
Last night, Maya apparently had more "episodes". What I mean by episode is that she would wake up, be ok for about 5 minutes, then get a look of terror in her eyes, then she would cry, but you can't hear it b/c she is still with larangitis from the breathing tube. Then her heart rate goes up to 190+ (ok is around 130 or below)and her O2 sats go down to 60 or lower (ok is 100-90). She then gets another dose of morphine, the doses back off to sleep. According to Chris, who was in the room with her last night, she had these every hour. I on the other hand slept beautifully in the bed in the family sleep suite. I went to bed around 9:30-10pm, and woke up at 7:30am, which I desperately needed. I am feeling much better this morning. The family sleep suite is located on the 6th floor of another building in the hospital. There are I think 25 sleep rooms, which consist of a twin bed, night stand, and phone. The sleep suite also has showers and towels. As I mentioned before, those beds are on a lottery basis for parents with children in the ICU only.
This morning update- Maya had a few more episodes, but within the last hour, she has been awake and not crying, which is great, although I am not sure if it is the sedative they just gave her so that they could take her arterial line (IV in the wrist that monitors blood pressure), and one IV in the foot. They also were able to give her a sponge bath, change her diaper, and put on some PJs (amazingly, they were not the typical clown pattern, but a comfy material with tigers on it.) We got to speak with the cardiologist and ICU Dr. just now and they are not yet ready to take her chest tube out, as they originally had planned to do b/c she still has quite a bit of stuff coming out of it. They were also giving her percussion treatments (yes, just what it sounds like, they were beating on her back and chest), to get the gunk in her lungs loose and moving. Apparently if she sits still too much, she collects fluid and gunk (like my technical terms?), which is obviously bad. They say that she is ready to go to the regular floor, but that they have no open beds to move her too. We are obviously not upset about that, because she gets more 1-1 from the RN.
New update- I actually started this blog around 9:30am, but keep getting interupted. We ordered Maya some food (scrambled eggs, wheat toast and fruit cup). The nurse moved Maya from the bed and into Chris's lap. She tried a bite of eggs, but cried through it and didn't want anything else to eat. Her and daddy are now sleeping in the chair together and getting some needed rest.
I will finish now and send it before it becomes lunchtime! Thanks again for all who have sent comments and their thoughts- Victoria
Last night, Maya apparently had more "episodes". What I mean by episode is that she would wake up, be ok for about 5 minutes, then get a look of terror in her eyes, then she would cry, but you can't hear it b/c she is still with larangitis from the breathing tube. Then her heart rate goes up to 190+ (ok is around 130 or below)and her O2 sats go down to 60 or lower (ok is 100-90). She then gets another dose of morphine, the doses back off to sleep. According to Chris, who was in the room with her last night, she had these every hour. I on the other hand slept beautifully in the bed in the family sleep suite. I went to bed around 9:30-10pm, and woke up at 7:30am, which I desperately needed. I am feeling much better this morning. The family sleep suite is located on the 6th floor of another building in the hospital. There are I think 25 sleep rooms, which consist of a twin bed, night stand, and phone. The sleep suite also has showers and towels. As I mentioned before, those beds are on a lottery basis for parents with children in the ICU only.
This morning update- Maya had a few more episodes, but within the last hour, she has been awake and not crying, which is great, although I am not sure if it is the sedative they just gave her so that they could take her arterial line (IV in the wrist that monitors blood pressure), and one IV in the foot. They also were able to give her a sponge bath, change her diaper, and put on some PJs (amazingly, they were not the typical clown pattern, but a comfy material with tigers on it.) We got to speak with the cardiologist and ICU Dr. just now and they are not yet ready to take her chest tube out, as they originally had planned to do b/c she still has quite a bit of stuff coming out of it. They were also giving her percussion treatments (yes, just what it sounds like, they were beating on her back and chest), to get the gunk in her lungs loose and moving. Apparently if she sits still too much, she collects fluid and gunk (like my technical terms?), which is obviously bad. They say that she is ready to go to the regular floor, but that they have no open beds to move her too. We are obviously not upset about that, because she gets more 1-1 from the RN.
New update- I actually started this blog around 9:30am, but keep getting interupted. We ordered Maya some food (scrambled eggs, wheat toast and fruit cup). The nurse moved Maya from the bed and into Chris's lap. She tried a bite of eggs, but cried through it and didn't want anything else to eat. Her and daddy are now sleeping in the chair together and getting some needed rest.
I will finish now and send it before it becomes lunchtime! Thanks again for all who have sent comments and their thoughts- Victoria
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