Last night, Maya apparently had more "episodes". What I mean by
episode is that she would wake up, be ok for about 5 minutes, then get
a look of terror in her eyes, then she would cry, but you can't hear
it b/c she is still with larangitis from the breathing tube. Then her
heart rate goes up to 190+ (ok is around 130 or below)and her O2 sats
go down to 60 or lower (ok is 100-90). She then gets another dose of
morphine, the doses back off to sleep. According to Chris, who was in
the room with her last night, she had these every hour. I on the
other hand slept beautifully in the bed in the family sleep suite. I
went to bed around 9:30-10pm, and woke up at 7:30am, which I
desperately needed. I am feeling much better this morning. The
family sleep suite is located on the 6th floor of another building in
the hospital. There are I think 25 sleep rooms, which consist of a
twin bed, night stand, and phone. The sleep suite also has showers
and towels. As I mentioned before, those beds are on a lottery basis
for parents with children in the ICU only.
This morning update- Maya had a few more episodes, but within the last
hour, she has been awake and not crying, which is great, although I am
not sure if it is the sedative they just gave her so that they could
take her arterial line (IV in the wrist that monitors blood pressure),
and one IV in the foot. They also were able to give her a sponge
bath, change her diaper, and put on some PJs (amazingly, they were not
the typical clown pattern, but a comfy material with tigers on it.)
We got to speak with the cardiologist and ICU Dr. just now and they
are not yet ready to take her chest tube out, as they originally had
planned to do b/c she still has quite a bit of stuff coming out of
it. They were also giving her percussion treatments (yes, just what
it sounds like, they were beating on her back and chest), to get the
gunk in her lungs loose and moving. Apparently if she sits still too
much, she collects fluid and gunk (like my technical terms?), which is
obviously bad. They say that she is ready to go to the regular floor,
but that they have no open beds to move her too. We are obviously not
upset about that, because she gets more 1-1 from the RN.
New update- I actually started this blog around 9:30am, but keep
getting interupted. We ordered Maya some food (scrambled eggs, wheat
toast and fruit cup). The nurse moved Maya from the bed and into
Chris's lap. She tried a bite of eggs, but cried through it and
didn't want anything else to eat. Her and daddy are now sleeping in
the chair together and getting some needed rest.
I will finish now and send it before it becomes lunchtime! Thanks
again for all who have sent comments and their thoughts- Victoria
Chris Gorski
seekerhiker@hotmail.com
3 comments:
Hi Gorski's,
It is a great relief that Maya has gotten thru the worst of the procedures. God has blessed us yet again. Be well and Vic try some steak,it always works for me.
love,
unke Jim
First of all, I am so glad to hear that your little one is stable and comfortable (for the most part). I do need to "thank you" for allowing me to observe your journey. At our cardio appointment we were told that we would need a heart cath done....thanks to reading your blog I knew that the MRI was maybe an alternative and was able to ask him about it! Unfortunately, we live in an area that is not as progressive in that area....we will have the cath instead but, I loved knowing it was an option and being able to ask about it. :^) My thoughts are still with you all!
Gorski, sounds like she is having what doctors refer to as "night terrors". I feel for you and Victoria. You have been in my thoughts and prayers. Much love and care to you and yours, Kat
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